Searching for reliable resources and support is one of the first steps families take following a diagnosis of Hereditary Diffuse Gastric Cancer syndrome.

Resources

We are starting a collection of resources to benefit others in the Hereditary Diffuse Gastric Cancer (HDGC) community.

Please contact us to send suggestions for resources you have found to be helpful and would like to share with others.

Resources

We are starting a collection of resources to benefit others in the Hereditary Diffuse Gastric Cancer (HDGC) community.

Please contact us to send suggestions for resources you have found to be helpful and would like to share with others.

Resources

CDH1 Gene | NIH NIH, Genetics Home Reference

CDH1 Information Sheet Nickolson-Guilford 2023

DLH Foundation  Gastric Cancer Organization

Find a Genetic Counselor, US & Canada  National Society of Genetic Counselors

Hereditary Diffuse Gastric Cancer Advocacy  HDGC Advocacy

Hereditary Diffuse Gastric Cancer Fact Sheet  HDGC Facts based on International HDGC Guidelines

Know Your Family History  Know Your Genes, Genetic Disease Foundation

Lobular Breast Cancer Alliance   Patient and Research Advocacy Organization

Patient Resources for Hereditary Diffuse Gastric Cancer NIH | Extensive list of resources geared toward HDGC families.

Prevention Genetics | DNA Banking  Prevention Genetics DNA Bank | DNA banking is the secure storage of an individual’s DNA for future use.

University of Otago, Centre for Translational Cancer Research  Dr. Parry Guilford

Publications

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The grassroots economic support we can provide here has a significant and meaningful impact on the futures of our CDH1 community. As a parent, you can imagine how difficult it is for us knowing we passed this gene on to our children, and we’re doing everything we can to save their stomachs and avoid a cancer diagnosis. We need and ask for your help to fund our initiative.


Our thanks to Allison Gritton | Gritton Design for bringing this site to life.