Searching for reliable resources and support is one of the first steps families take following a diagnosis of Hereditary Diffuse Gastric Cancer syndrome.
Resources
We are starting a collection of resources to benefit others in the Hereditary Diffuse Gastric Cancer (HDGC) community.
Please contact us to send suggestions for resources you have found to be helpful and would like to share with others.
Resources
We are starting a collection of resources to benefit others in the Hereditary Diffuse Gastric Cancer (HDGC) community.
Please contact us to send suggestions for resources you have found to be helpful and would like to share with others.
Resources
CDH1 Gene | NIH NIH, Genetics Home Reference
DLH Foundation Gastric Cancer Organization
Find a Genetic Counselor, US & Canada National Society of Genetic Counselors
Hereditary Diffuse Gastric Cancer Advocacy HDGC Advocacy
Hereditary Diffuse Gastric Cancer Fact Sheet HDGC Facts based on International HDGC Guidelines
Know Your Family History Know Your Genes, Genetic Disease Foundation
Lobular Breast Cancer Alliance Patient and Research Advocacy Organization
Patient Resources for Hereditary Diffuse Gastric Cancer NIH | Extensive list of resources geared toward HDGC families.
Prevention Genetics | DNA Banking Prevention Genetics DNA Bank | DNA banking is the secure storage of an individual’s DNA for future use.
University of Otago, Centre for Translational Cancer Research Dr. Parry Guilford
Publications
- Hereditary Diffuse Gastric Cancer, March 2023 Lyvianne Decourtye-Espiard, Parry Guilford. Available free online until May 4, 2023.
- Hereditary Diffuse Gastric Cancer Fact Sheet HDGC Facts based on International HDGC Guidelines
- Life After Prophylactic TG Study Geoffrey Roberts1,12 · Patrick R. Benusiglio2 · Tanya Bisseling3 · Daniel Coit4 · Jeremy L. Davis5 · Sam Grimes1 · Theresa A. Guise6 · Richard Hardwick1 · Kirsty Harris7 · Paul Furman Mansfield6 · Jeremy Rossaak8 ·Karen Chelcun Schreiber9 · Peter P. Stanich10 · Vivian E. Strong4 · Pardeep Kaurah11 on behalf of the LAP-TG Study Group
- Medication After Gastrectomy Kirsty Harris, Clinical Pharmacist
- Hereditary Diffuse Gastric Cancer: Updated Clinical Practice Guidelines NIH National Library of Medicine (Aug 2020)
Websites
- National Cancer Institute Patient Resources for Hereditary Diffuse Gastric Cancer
- National Cancer Institute Diet and Nutrition After Gastrectomy: Your Plan
Blogs
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The DLH Foundation supports the Charter of Save Our Stomachs with time and financial investments. The grassroots economic support we can provide here has a significant and meaningful impact on the futures of our CDH1 community. As a parent, you can imagine how difficult it is for us knowing we passed this gene on to our children, and we’re doing everything we can to save their stomachs and avoid a cancer diagnosis. We need and ask for your help to fund our initiative.
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