Searching for reliable resources and support is one of the first steps families take following a diagnosis of Hereditary Diffuse Gastric Cancer syndrome.

Resources

We are starting a collection of resources to benefit others in the Hereditary Diffuse Gastric Cancer (HDGC) community.

Please contact us to send suggestions for resources you have found to be helpful and would like to share with others.

Resources

We are starting a collection of resources to benefit others in the Hereditary Diffuse Gastric Cancer (HDGC) community.

Please contact us to send suggestions for resources you have found to be helpful and would like to share with others.

Resources

CDH1 Gene | NIH NIH, Genetics Home Reference

DLH Foundation  Gastric Cancer Organization

Find a Genetic Counselor, US & Canada  National Society of Genetic Counselors

Hereditary Diffuse Gastric Cancer Advocacy  HDGC Advocacy

Hereditary Diffuse Gastric Cancer Fact Sheet  HDGC Facts based on International HDGC Guidelines

Know Your Family History  Know Your Genes, Genetic Disease Foundation

Lobular Breast Cancer Alliance   Patient and Research Advocacy Organization

Patient Resources for Hereditary Diffuse Gastric Cancer NIH | Extensive list of resources geared toward HDGC families.

Prevention Genetics | DNA Banking  Prevention Genetics DNA Bank | DNA banking is the secure storage of an individual’s DNA for future use.

University of Otago, Centre for Translational Cancer Research  Dr. Parry Guilford

Publications

  • Hereditary Diffuse Gastric Cancer Fact Sheet  HDGC Facts based on International HDGC Guidelines
  • Life After Prophylactic TG Study  Geoffrey Roberts1,12 · Patrick R. Benusiglio2 · Tanya Bisseling3 · Daniel Coit4 · Jeremy L. Davis5 · Sam Grimes1 · Theresa A. Guise6 · Richard Hardwick1 · Kirsty Harris7 · Paul Furman Mansfield6 · Jeremy Rossaak8 ·Karen Chelcun Schreiber9 · Peter P. Stanich10 · Vivian E. Strong4 · Pardeep Kaurah11 on behalf of the LAP-TG Study Group
  • Medications After Gastrectomy Kirsty Harris, Clinical Pharmacist

Blogs

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The DLH Foundation supports the Charter of Save Our Stomachs with time and financial investments. The grassroots economic support we can provide here has a significant and meaningful impact on the futures of our CDH1 community. As a parent, you can imagine how difficult it is for us knowing we passed this gene on to our children, and we’re doing everything we can to save their stomachs and avoid a cancer diagnosis. We need and ask for your help to fund our initiative.

Our thanks to the DLH Foundation and Allison Gritton | Gritton Design for bringing this site to life.